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20 May 2010

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emma

Maybe it's assumed too much that people on the autistic spectrum don't want to just comment or "chat"? We have similar problems differentiating between a request and a comment too.

McDonalds could just be a comment that this is somewhere else that you go to eat? The subject of food was there as you had just had TexMex, he could be linking the two together rather than requesting? (I know you know more about this than I do, I'm just kind of talking out loud)

Dimitri banged his head on a door frame yesterday, good opportunity to get out the iPod with the feelings pictures I thought...pain is a tricky subject though, dwelling on it can make things worse with Dimitri (he started slapping the bruise). But at the same time he needs a way to communicate pain or discomfort...

Louise

I've wondered this for a while about Charlie's use of nouns. It must be extremely frustrating for him to be surrounded by talkers (which you and Jim are) and yet not able to participate much in t he conversations. Not to mention that every time he says something, people immediately act like they must DO something about it! No peaceful-easy feeling there.

Can Charlie learn to utilize verbs more, perhaps in combinations? If he said "eat at McDonald's", rather than just the name of the burgermill, at least you'd have a greater insight into what he is thinking.

"Walk," for instance, is a verb and a noun, and can even be a command. How d you think Charlie is using it? Does he seem to think in solid, discrete objects, that is, nouns, or in adjectives or in relationships and actions, verbs?

Jennifer

I'm very glad Charlie benefits from lots of physical exercise. When I read this, I think about some of the original Kanner kids that seemed to do well in a traditional farming setting. I'm considering how people with ASD lived in the past. I'm sure that many of them enjoyed the physical work on a farm, and the predictable routine, and the feeling of a solid, measurable accomplishment at the end of the day.

Oh, and I'm so pleased the Hub is back, since it allows me to read such an positive and uplifting post. The best to all your family!

Alice

Boys and food will keep you on your toes.

My NT son asks for more than he can eat quite often. It takes a while for him to realize he's full, I think.

One of my twins with autism says "chicken!" a lot when he doesn't actually want chicken. Maybe he's trying to talk about the bird? It gets confusing!

Kristina Chew

@Alice,
I seem to be grocery shopping almost every day! If it's in the house, Charlie eats it or at least starts too---works better just to get those few things. And we live within 2 minutes of 2 grocery stores....

@Jennifer,
If not a farm, a job and living situation with and in wide open spaces, with physical activity in regular doses....... thanks so much, there have been some transformations going on with the Hub it seems!

@Louise,
We and Charlie's speech therapists have worked a long time on him increasing the length of his sentences with verbs, adjectives, prepositional phrases---on his own, he seems to prefer to stick to as few words as possible. I guess he's thinking, why else go to McDonald's but to eat. We don't talk nearly as much when Charlie's awake and around; I often repeat back the phrases he says, or say the same words with a twist. He seems to think this amusing....

@Emma,
I think McDonalds was such a comment, just a name of another fastfood place we sometimes visit after school. Today, we passed the TexMex place and Charlie didn't ask for it, but did want McDonalds, so there we did go...... Did Dimitri bang intentionally, as far as you could tell?

We have to be careful not to dwell on any injuries Charlie gets, like a stubbed toe----sometimes, after accidentally stumbling or some such, he's banged his head, as if to give him, um, some other pain to concentrate on?

Laura B

My first reaction to his mentioning a different restaurant after just having eaten, was that he was making an association with other times you took him to other restaruants. Maybe he's making conversation in his own way.

@Alice, when one of my sons was younger, he used to love exclaiming "Chicken!" simply because he loved the sound of the word. He'd try it out with different intonations, but always with vigorous enthusiasm, just waiting for a reaction to the sound of that word. Thinking about forming that word in the mouth, it does feel a little unusual - kind of hard at the beginning, a little gutteral in the middle, and gently closing at the end.

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