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01 August 2012


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Dixie Redmond

I liked your phrase "have become perilous enough to cancel out any pleasures". Growth of any kind opens up the world more, brings more stimuli in, and consequently means more to process for my son. It's part of our journey.

Kristina Chew

It is a journey, yes. I always thought we'd have the beach and I'm sure Charlie did/does too. So much more aware of the dangers out there now and that we can't swoop him off to safety.


I can't begin to imagine how hard it must be for Charlie to give up his ocean swims, and yet how incredibly frightening for you to think he could just swim on and on without thinking about turning and coming back to shore. I wish there was an easy solution for all of you.

Your writing is lovely. And your words such a poignant reminder of how everything changes over time, even the things we would like to stay exactly as they are.


Would Charlie like to swim for Special Olympics? Or is there another solution to the day at the beach - e.g. hire a strong swimmer to be a personal lifeguard for Charlie, to go out on a boat beside him in case he swims out too far, bring him back. Night swims can be deflected with strong doors, though the nerve storms can't be so contained.

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by Kristina Chew …………………………

Kristina Chew

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