Thinking Outside the ABA Box
Atlantic City Adventure

Write Your Name

Charlie and I practice writing our names for the blanket covering Thank you to everyone for the condolences and sympathy on my grandmother, Ngin Ngin, passing away, early on the morning of October 7. Thursday night I bought my plane ticket to fly out next Friday night for her funeral, which will be next Saturday, the 17th of October. My family, with my dad (he is the fourth of Ngin Ngin's five children, and the oldest son) and his siblings and my oldest cousin have been working out various plans and making numerous arrangements, including a Cantonese translator,  paper "money" and lai see (red envelopes). 

Ngin Ngin was the last of her generation to pass on and my family is definitely incorporating a number of Chinese traditions into the service. One is a blanket covering that will take place at her wake. (I had never heard of this ritual before but then Ngin Ngin is the only person I've ever known who lived to be over 100.) My oldest cousin is making a special quilt and said that we can scan or fax images to her, to be transferred to the fabric.

I'd like Charlie to write his name on the quilt, of course. Friday night, after he'd led Jim on a bike ride, we'd had an early diner dinner, and we'd dropped Jim off in downtown Jersey City so he could catch the PATH train to do go to his office (Jim stays home on Friday and gets Charlie at school and I get a nice long afternoon to do things in my office)---after all that, I produced pen and paper and asked Charlie to write his name.

The answer to my request was "no."

"Yeah, yeah," I said. "You have to write your name for the blanket for Tai Po."

"Write your name," said Charlie.

"For Tai Po," I said. "For a special blanket."

"Tai Po," said Charlie. And took the pen and carefully wrote on the piece of paper.

You can see his first try in the photo: I'm not quite sure what happened to the a, looking as it does more like an m or Charlie's way of writing r. There is something distinctly, definitely, Charlie Fisher about that m and the half-oval C, and I think that's one of the best e's I've seen Charlie write. I didn't want to drive him crazy by insisting he keep writing his name on a piece of paper, so I added my Chinese name, Ju Lei Jen, to the right. And saw that, I need to practice writing my name.

I more than wish---Jim certainly wishes---that the three of us could be flying out next Friday night. It's going to be a very quick, and intense, trip, with lots of ceremony, talking (in more than one language), and many people whom I have not seen in years, years and years. Along with Charlie scheduled for intake at a large autism center on Tuesday of next week, a hurried trip to California and for a funeral would be just too much (it could be too much for me, frankly). Jim Charlie and I have traveled so far---covered so much territory---together, I know they'll be with me at every stage of the journey. 

And Jim's writing his name for the blanket, too.



That blanket is a beautiful idea- I'm glad that Charlie participated.


I think Charlie's penmanship looks just fine! It's exactly like my 12-year-old son's writing (who is "neurotypical"). I know you wish that all three of you could go, but it sounds like way too much hubbub for Charlie. He understands so much, he will be there with you, along with Jim.


He writes really well! You can't--literally can't--read what TH writes, including his name. Every time you post now, I read things about Charlie that seem new or surprising. As I posted before, it just seems like he's on a developmental streak right now. And the tight and completely understood interaction among the three of you comes through so clearly.

Safe travels to you when the time comes. It's tough when turning-point events pile up like that.

Kristina Chew

Ahem, my husband's penmanship is not so easy to read (by his own acknowledgement) and my careful D'Nelian letters have turned into scratches after years of typing typing and more typing (though I can write fine if I try and teaching languages I get a fair amount of practice).

Thank you thank you----often I feel that I can always count on Charlie to surprise me!

Phil Schwarz (Shmuel ben-Avraham ve-Hannah)

Charlie's penmanship is better than mine ever was!

(FWIW, I *detested* the D'Nealian cursive hand. It was *illogical*. So in 6th grade I invented my own system of ligatures for the D'Nealian manuscript hand, and luckily for me, penmanship was taught that year by our math teacher, who said that I could use my invention as long as I did so consistently. Later on I discovered that what I'd really done was simply to re-invent the Italic hand. Sad to say though that I never got very neat at it.)

BTW, Ju Lei Jen sounds beautiful -- what does it mean?

My Hebrew name is simply Samuel (my middle name, after my father's father, who died 3 years before I was born), son of Abraham (my father's Hebrew name) and Hannah. The Hannah is interesting: my mother's original Hebrew name was Gittel, which she detested. There is a tradition of taking a new name, when in the course of dealing with a life-threatening illness, which she did, when diagnosed with ovarian cancer. She chose Hannah, the Biblical mother of the prophet Samuel, for whom I and my father's father were named. And so she is Gittel on her ketubah (ceremonial marriage-document), and Hannah on her tombstone, and in memory ever after.

karen d

What a beautiful tradition. I'm so glad Charlie's name, in his own writing, will be included on the blanket. Safe travels. xoxo


Wow, Charlie writes so well! (As everyone has said.)

I'm very sorry for your loss.

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