In looking over the most recent photos of Charlie as of those from his school's annual prom, and even though I have witnessed his steady... Read more →
Growing Up
I used to think that every birthday for Charlie would be increasingly difficult for me to wrap my thoughts around. Starting a long time ago,... Read more →
IPP supported living supported employment independent living direct support a "quality management process" (as compared to the usual "quality assurance") self-determination legacy homes integrated communities... Read more →
Tuesday was Charle's nth (I have lost count) IEP and the big subject of discussion was his ITP. That stands for Individual Transition Plan. Charlie... Read more →
The Unbearable Ambivalence of Success
01 January 2015
Success is a word that has come to stoke degrees of ambivalence in me over the years of raising Charlie. There's no denying that we... Read more →
You should have seen the look on Jim's face when I told him that the U.S. and Cuba will restore diplomatic relations. He is a... Read more →
Three Days of Birthday and Then Back to Business
18 May 2014
We certainly did not intend to celebrate Charlie's 17th birthday for three days in a row, especially given his historical need for lowkeying birthdays. But... Read more →
Happy Birthday Charlie
15 May 2014
Thanks for sharing the long road with us for 17 years, each more beauteous and lovely, and full of love. ὠ φίλτατον μέλημα [o philtaton... Read more →
Working Papers
16 April 2014
Charlie is starting in the Workability program (last Friday, his job was to clean up the Richmond auditorium). On Monday, Jim texted me (I was... Read more →
Musa, mihi causas memora
06 April 2014
Two bike rides is the standard on our weekends. Saturday, over one bridge to Marin County and then over the Golden Gate to San Francisco... Read more →
Nice Little Milestone Achieved That I Will Not Say Too Much About For the Sake of Privacy
24 July 2013
Charlie had, or perhaps was having for the past several days, a lot of thymic distress that was resolved (in full sense of the Latin... Read more →
On being that 'different' family
14 July 2013
When Charlie was about 11 or 12, I'd feel sad every time he got on a carnival ride. He was always the biggest kid even... Read more →
I stood beside Charlie in line for this very tall 'frog hopper' -- that's what he knows this ride as because the first, much more... Read more →
Charlie Turns 16
16 May 2013
Charlie is now 16 years old and Wednesday morning I packed his book bag with store-bought cupcakes wrapped in brown paper (I'm not sure but... Read more →
Jersey Cholly, He Is
08 May 2013
Since January, Charlie has had exactly one incident at school, a statistic all the more notable when you consider the amount of heavy-duty anxiety and... Read more →
Negotiating. And Ketchup
21 March 2013
I got as close as I ever have last Wednesday night (Jim gone teaching after being home during Spring Break last week) to negotiating Charlie... Read more →
Pleasure and Pain: The Box of Routine, the Beach Isn't the Same
20 January 2013
When you're expecting to see this and this and this at the beach and you see (as we did on Saturday) this -- -- pretty... Read more →
For No Man Nor Woman Is An Island
11 January 2013
While signing Charlie, on the Friday of a curious week, in at the school office after he quote unquote 'did the best ever' at the... Read more →
It Was Another Perfectly Imperfect, Imperfectly Perfect Year
31 December 2012
2012; Charlie turned 15 and it was a very good year though given the two ER visits for stitches in the back of his head;... Read more →
He's Not Going to Melt in the Rain
16 December 2012
I got up around 4-something-am to see what Charlie was up to in the kitchen, his cold again interrupting his sleep, and in the midst... Read more →